“I don’t see fear as a warning to turn away. I see it as an invitation to go forward because in it lies love and the path to greater love. If I turn with gentle curiosity toward that flicker, I discover new paths to everything from practical systems change to the core of healing and health.”
— Sharon F. Terry, ted Talk, 2015
Talks
TED Talk — Science didn’t understand my kids’ disease until I decided to study it
2016
Big Data: don’t forget the people
2015
For my kids and all kids
2011
The Precision Medicine Initiative (All of US)
2015
National Library of Medicine Anniversary
2010
Interviews
PBS NewsHour
2022
TED Radio Hour
2017
From Competition To Sharing: How Her Children’s Rare Disease Led Sharon Terry To Revolutionize Medical Research • Forbes
2020
Unfinished Live
2020
Press Releases
ASHG Honors Sharon Terry, MA with the 2021 ASHG Advocacy Award
2020
iHope Genetic Health: Illumina’s $120M in-kind donation
2021
Genetic Alliance Selected for AWS Health Equity Initiative
2021
Papers
Life as a Numerator
2016
Learning Genetics
2003
The Study is Open: Participants are Recruiting Investigators
2017
Awards & Honors
2005
Honorary Doctorate for community engagement, Iona College
2007
1st Annual Patient Service Award, UNC Institute for Pharmacogenomics and Individualized Therapy
2009
Inaugural Disruptive Woman in Health Care
2009
Elected Ashoka Fellow
2010
Research!America’s 2011 Paul G. Rogers Distinguished Organization Advocacy Award
2011
Clinical Research Forum’s Public Advocacy Award
2012
Spirit of Empowerment Advocacy Award, Facing Our Risk of Cancer Empowered
2012
Honorary Professorship, Hebei United University, Tangshan, China
2012
Collaborate|Activate Innovation Challenge First Prize Award for Platform for Engaging Everyone Responsibly (PEER)
2013
Ashoka Changemakers First Prize for PEER
2013
Forbes Best Business Model for Transforming Health Systems for PEER
2013
FDA Hero for the 30th Anniversary of the Orphan Drug Act
2014
Women of Impact, Robert Wood Johnson Foundation
2015
Robert Wood Johnson Foundation Pioneer Award
2016
National Associate, National Research Council
2016
Health 2.0 Activist Award
2016
TedMed Talk (>1M views) and TED Radio Hour
2019
Luminary Award from the Precision Medicine World Conference
2021
American Society of Human Genetics Advocacy Award